Holly, it pains me to know you are suffering like this. I am so sorry.
You are in my thoughts and prayers friend and I will pray for another miracle and that you are given the wisdom and perseverence to find the doctor with the knowledge to identify the cause of your pain and help you.
I can now understand your natural affinity for our favorite Pink Floyd song "Learning to fly"
It is on my ipod and is one of my absolute favorite workout tunes!
Don't give up Holly, I truly believe there IS a doctor who can can figure out the cause of this.